This Insidious Dementia
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This is a roundup of websites for those of you looking for dementia information.
If you, your loved one, or a family member has received a diagnosis of dementia or mild cognitive impairment, the following websites would be my go-tos to check out for dementia information and for caregiving.
Dementia information websites
This site would be my number 1 go-to site to learn about Alzheimer’s and dementia. Here’s where you’ll find the latest information, help and support. There’s info for caregivers as well.
You might consider signing up for the weekly newsletter.
Then I would do a search for the Alzheimer’s Association in your area of the country to find a local office near you. These are the offices that will post local caregiver meetings and info sessions and other such offerings.
The Mayo Clinic’s site on Dementia would also be one of the first to check out. I mean, come on, it’s the Mayo Clinic! So if you’re looking for info that’s more on the medical side of things, that’s where I would go.
Confession here. I wasn’t aware of this site until just recently. It’s not as extensive as the Alz Asso but it does have some caregiver info and that’s a plus.
There’s a nice video about creating a home or apartment for someone with dementia that’s worth watching for ideas. And there is also a newsletter that I would encourage you to sign up for.
Some good information on this website for people with Alzheimer’s and for the caregivers.
They have publications you can download.
I figured this site should be included as well. However, it looks like it needs to be updated with more current information.
This is the Alzheimer’s Society out of the UK. Even though it’s not geared towards us in America, there’s still some good information on this site and I think it’s worth checking out.
Same idea here. This one is based out of Canada. Again, there’s still some good information on these sites.
If you’re inclined, you might check out the Alzheimer’s websites for Swedon and Australia as well. While you’re at it, you could also try other countries. Other countries may be ahead of us (in America) in new Alzheimer’s/Dementia information.
Here’s another well-known institution that’s been doing research on dementia. There’s a lot of information on this site as well.
This site is for Caregivers. However, it’s not just for dementia caregivers. It has some information but not a lot and it needs to be updated.
I like this site a lot. It’s geared towards the caregiver so there’s lots of information. It has a newsletter you can sign up for as well.
Here is another website geared towards caregivers of all types. There is a section devoted to Alzheimer’s.
Notable doctors with dementia information
She is a naturopathic doctor who has really delved into the field of dementia. I think she is one to really follow.
Here is a second doctor that I would suggest looking at for the work he has done in the dementia field. Lots of interesting info on this website.
Dr Dale Bredesen
Here is another doctor to watch for. His most recent book is about reversing Alzheimer’s so I feel that he is one to follow along with.
Videos to check out
Teepa Snow and dementia go together. She is a leader in providing caregiver training for people with dementia. I wish I had found her when I was providing care for my mom because I’m pretty sure I would have handling some things differently. Teepa teaches you the why behind the actions that people with dementia make and I wish I had known that earlier.
Rachel I did know about when I was caring for my mom. I would catch her short videos every now and then. Her background is in Gerontology and working with residents in dementia care facilities.
She also has a website, with blog posts that look like the transcripts of her videos. So it looks like you can catch her info either way.
So there you are, 10+ websites/sources you can check out for information on dementia and caregiving.
I work in a memory care unit. I would love to get new ideas and a better understanding of what I could do to make their daily living more complete than just eating and sleeping.
Sounds like that might be a good blog post idea to research Stephanie! I’ll work on that. I would think any activity involving music would be a good place to start. I would also check out Rachel Wonderlin’s youtube videos for ideas.